| Field Name |
Format |
Description |
| CHILD_ID | Character or Numeric | *Required Patient ID of the child or Dummy ID If child is not enrolled into care at an IeDEA site, enter mother's ID with dashed numeric suffix such as [MOTHER_ID]-1, [MOTHER_ID]-2, etc. here. |
| ABNORM1 | Character
See Code ListABNORM1 | Code | Definition | | 1.1 | Hydrocephalus | | 1.2 | Microcephaly | | 1.3 | Neural tube defects | | 1.4 | Central Nervous System (CNS) - Other | | 2.1 | Cleft lip and palate | | 2.2 | Eye, Ear, Face and Neck - Other | | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | | 3.3 | Heart - Other | | 4.1 | Gastroschisis | | 4.2 | Intestinal atresia | | 4.3 | Tracheo-esophageal Fistula | | 4.4 | Omphalocele | | 4.5 | Anorectal malformation | | 4.6 | Gastro-intestinal system - Other | | 5.1 | Ambiguous genitalia | | 5.2 | Hypospadias | | 5.3 | Genitals - Other | | 6.1 | Posterior urethral valves | | 6.2 | Renal and urinary system - Other | | 7.1 | Talipes equinovarus (club foot) | | 7.2 | Limb defects - Other | | 8.1 | Down syndrome | | 8.2 | Chromosomal anomaly - Other | | 9.1 | Other Organ System(s) Abnormality |
| |
| ABNORM2 | Character
See Code ListABNORM2 | Code | Definition | | 1.1 | Hydrocephalus | | 1.2 | Microcephaly | | 1.3 | Neural tube defects | | 1.4 | Central Nervous System (CNS) - Other | | 2.1 | Cleft lip and palate | | 2.2 | Eye, Ear, Face and Neck - Other | | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | | 3.3 | Heart - Other | | 4.1 | Gastroschisis | | 4.2 | Intestinal atresia | | 4.3 | Tracheo-esophageal Fistula | | 4.4 | Omphalocele | | 4.5 | Anorectal malformation | | 4.6 | Gastro-intestinal system - Other | | 5.1 | Ambiguous genitalia | | 5.2 | Hypospadias | | 5.3 | Genitals - Other | | 6.1 | Posterior urethral valves | | 6.2 | Renal and urinary system - Other | | 7.1 | Talipes equinovarus (club foot) | | 7.2 | Limb defects - Other | | 8.1 | Down syndrome | | 8.2 | Chromosomal anomaly - Other | | 9.1 | Other Organ System(s) Abnormality |
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| ABNORM3 | Character
See Code ListABNORM3 | Code | Definition | | 1.1 | Hydrocephalus | | 1.2 | Microcephaly | | 1.3 | Neural tube defects | | 1.4 | Central Nervous System (CNS) - Other | | 2.1 | Cleft lip and palate | | 2.2 | Eye, Ear, Face and Neck - Other | | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | | 3.3 | Heart - Other | | 4.1 | Gastroschisis | | 4.2 | Intestinal atresia | | 4.3 | Tracheo-esophageal Fistula | | 4.4 | Omphalocele | | 4.5 | Anorectal malformation | | 4.6 | Gastro-intestinal system - Other | | 5.1 | Ambiguous genitalia | | 5.2 | Hypospadias | | 5.3 | Genitals - Other | | 6.1 | Posterior urethral valves | | 6.2 | Renal and urinary system - Other | | 7.1 | Talipes equinovarus (club foot) | | 7.2 | Limb defects - Other | | 8.1 | Down syndrome | | 8.2 | Chromosomal anomaly - Other | | 9.1 | Other Organ System(s) Abnormality |
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| ABNORM4 | Character
See Code ListABNORM4 | Code | Definition | | 1.1 | Hydrocephalus | | 1.2 | Microcephaly | | 1.3 | Neural tube defects | | 1.4 | Central Nervous System (CNS) - Other | | 2.1 | Cleft lip and palate | | 2.2 | Eye, Ear, Face and Neck - Other | | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | | 3.3 | Heart - Other | | 4.1 | Gastroschisis | | 4.2 | Intestinal atresia | | 4.3 | Tracheo-esophageal Fistula | | 4.4 | Omphalocele | | 4.5 | Anorectal malformation | | 4.6 | Gastro-intestinal system - Other | | 5.1 | Ambiguous genitalia | | 5.2 | Hypospadias | | 5.3 | Genitals - Other | | 6.1 | Posterior urethral valves | | 6.2 | Renal and urinary system - Other | | 7.1 | Talipes equinovarus (club foot) | | 7.2 | Limb defects - Other | | 8.1 | Down syndrome | | 8.2 | Chromosomal anomaly - Other | | 9.1 | Other Organ System(s) Abnormality |
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| ABNORM5 | Character
See Code ListABNORM5 | Code | Definition | | 1.1 | Hydrocephalus | | 1.2 | Microcephaly | | 1.3 | Neural tube defects | | 1.4 | Central Nervous System (CNS) - Other | | 2.1 | Cleft lip and palate | | 2.2 | Eye, Ear, Face and Neck - Other | | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | | 3.3 | Heart - Other | | 4.1 | Gastroschisis | | 4.2 | Intestinal atresia | | 4.3 | Tracheo-esophageal Fistula | | 4.4 | Omphalocele | | 4.5 | Anorectal malformation | | 4.6 | Gastro-intestinal system - Other | | 5.1 | Ambiguous genitalia | | 5.2 | Hypospadias | | 5.3 | Genitals - Other | | 6.1 | Posterior urethral valves | | 6.2 | Renal and urinary system - Other | | 7.1 | Talipes equinovarus (club foot) | | 7.2 | Limb defects - Other | | 8.1 | Down syndrome | | 8.2 | Chromosomal anomaly - Other | | 9.1 | Other Organ System(s) Abnormality |
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| ABNORM_S | Character | Further specification of abnormality |